Remember that nothing is forever and if it costs you your peace, it’s too expensive. Rethink, re-evaluate and don’t be afraid to ask for what you want. Bryony Hopkins, A Belly Full Of

Spoiler alert – you can still have a brilliant career with IBD. Now I’ve said that, hopefully you will know what to expect from this blog article – because guess what, being diagnosed with IBD (or any chronic illness) doesn’t mean you can no longer shoot for the stars and achieve your dream career. It doesn’t mean you have less earning potential and it certainly does NOT mean you are not as brilliant and talented as your colleagues.

Why do I have the authority to say this, you might ask? I’ve been working in the media industry since I was 21, and I have been through plenty of blunders in the process of trying to understand how to make my work and Crohns work together. There is no handbook for this stuff and I didn’t realise how easy I had it at university in terms of being able to manage my workload based on my illness. Of course, I had deadlines and exams, but I could revise from my bed, without anyone questioning it. I could write essays in my PJs, saving energy on getting dressed and commuting. I could dip out lectures if I was poorly, and it didn’t mean I was impacting anyone else apart from myself and I certainly wasn’t losing money doing so.

When I got my first full time job out of university as a receptionist at an animation agency, it was a total shock to the system. Not only was I commuting from my parents into London (an hour and a half each way), I was also working 0830 – 1830 hours. I didn’t know how to tell my manager about my Crohns because I barely understood how it was going to impact me at work myself. It was a struggle, but six years on I have figured out a way to try and make it work.

Before you read on, you should know I absolutely do not have this all figured out. One of the gifts of my industry is it is very fast paced, so moving jobs regularly is normal. It’s a gift because I have had the opportunity to try out multiple work arrangements with no impact on my future employability (because every young journo is doing the same!). After having to tell managers about my Crohns so many times, I think I have finally nailed the conversation about my chronic illness and I’m not scared to ask for what works for me anymore, and that’s what I want to share with you in this blog.

Bryony Hopkins, A Belly Full Of

My story

I have always worked and never been afraid of hard work, but I didn’t know how to balance my Crohns until I started work after university. I had my first Saturday job at 16, and always worked throughout the summer at cafes, bars, shops – anywhere that would pay me, basically! I worked as a receptionist after university for 4 months, before I landed my first job in a large news organisation. Getting this job was the first time I had a conversation with any manager ever about my Crohns. I never declared it at my Saturday jobs (I suppose my 18 year old self thought I didn’t need to), but after a brutal 4 months of not telling my workplace at the animation agency, it was clear as day that I needed my managers to be in the loop.

Shortly after I started at the news broadcaster, I had a huge bowel obstruction and needed major abdominal surgery. I was off work for 8 weeks in total and my bosses were absolutely amazing and totally supportive. At this stage, you would have thought I would be able to have the same conversation with my manager when I moved to a new department. But I didn’t. Plagued with feelings that I wouldn’t be seen as good enough (combined with my own imposter syndrome at even being a TV producer), I didn’t tell any managers. I worked shifts for a year and a half full time and it led me into a pit of exhaustion. So much so, I quit. I led myself to a point of complete exhaustion that I couldn’t see the wood from the trees – and I was convinced I didn’t want to be a journalist anymore. I moved into a completely different role in a new organisation, which I convinced was right for me. It wasn’t.

At this point I realised I had to start telling everyone who was involved in my work life about my Crohns. I am extremely fortunate I returned to the same organisation as a freelancer and have since had unbelievable support from every department I have worked in. It took that entire experience for me to realise that if I wanted to make my dreams a reality, I had to be honest and I had to ask for what I wanted. Since then, I have worked a mix of full time, and doing part time when my health was unstable. I am now starting another new role in a different department in a week (at time of writing), and I’ve already told them about my Crohns. It is unbelievable relief for me to be able to do so, and actually helps me perform better at work.

How to have a conversation with your boss about your IBD/chronic illness

From the questions and comments I’ve received in my inbox, this is the thing you guys dread the most! However, I think this tick list will help you prepare for the conversation and how to have it. Honestly after years of avoiding this conversation and now having it seemingly every 6 months, I can promise it is really not as bad as you think! As always would love to hear if you guys have any further tips – so please do message me if you do!

Pink and Beige Cute Icons Process Infographic (1)

Top tips for dealing with colleagues

Ultimately colleagues don’t need to know the ins and outs of your illness like your manager does, but equally, if your health demands you are absent for recovery or appointments, this may impact them (it certainly works that way in my industry). I have found it best to let my colleagues know they can ask me questions at any time, and I will always explain if someone asks why I was off sick/away. I won’t announce my life story or tell them the ins and outs of Crohns unless they ask, but I will make it clear that it’s not a secret. Equally, don’t feel obliged to share more than you are comfortable with – and if you have concerns, don’t be scared to raise issues with your manager.

Dealing with money worries

It’s all very well me saying go part-time, but we all know that this means a pay-cut and actually, this really isn’t always viable. I think this is why it is so important to establish an open conversation with your manager. If you have a chronic illness, you should also have the right to ask for reasonable adjustments to make your job work for you, which may include flexible working arrangements, like working from home or reducing your hours when your health requires it. To learn more about reasonable adjustment and other options, click here.

 What are your rights as an employee?

Many of you, like me, will have really understanding employers who value your work and value YOU. However, if you feel you are being treated unfairly, Crohns and Colitis have brilliant advice here.

Go get it 

I really hope this blog has provided some helpful advice for how to cope with managing a career with IBD. The thing is about having a chronic illness is that it makes you question everything, and I firmly believe we should never ignore these questions. Remember that nothing is forever and if it costs you your peace, it’s too expensive. Rethink, re-evaluate and don’t be afraid to ask for what you want.

If you’ve got this far – THANK YOU! As always, please do get in touch with your thoughts – love hearing from you all!

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Two images side by side, one enjoying a day at Ascot Races and the second in hospital

I have been both of these people over the past 10 months – and that really is the story of me living with active Crohns.

2018

Let me take you back. It was November 2018. Ahead of me I had Christmas, a incredible 7 week trip around Australia and Singapore planned and I just found out I landed a new job which I’d be starting in April 2019. I was so pumped for the things to come, but my body was having other ideas. My Crohns symptoms had started flaring to a level I couldn’t ignore and before I knew it, I was whipped into hospital to have a joyous flexi sigmoidoscopy to have a good old look at what was going on (I don’t have a large intestine, hence the flexi rather than a colonoscopy).

I always have sedation when I have a flexi (sorry but after 23 years of Crohns and some kind of camera up my bum at least once every 18 months, I made a blanket rule for myself to always have sedation. It just makes the experience slightly more pleasant), so when I woke up I was totally disorientated. When I heard my consultant say “we’ve found some severely active Crohns”, I was kind of hoping I was dreaming. Alas, I was not, and the second thing he said to me in my drunken-post sedation state was “but the good news is, we have options before more surgery”. I wobbled out to greet Josh who was waiting for me, still slurring my words from the sedation to say out loud for the first time “I have active Crohns”. The shock was similar to someone hitting me round the head.

For context, I was diagnosed with Crohns Disease when I was four years old and I am absolutely no stranger to having active disease. When I was 12 years old I had my 90% large colon removed, lived with an ileostomy for three years and was re-joined when I was 16. After that I had many scar tissue complications which involved multiple operations, but I never had any ‘active’ Crohns (read my full IBD story here). In 2016 I had minor-moderate flare, which I got under control with the liquid diet (read all about that here) and since then with the help of Adalimumab, I had generally felt pretty well. So to be told this was no longer the case and there was a very real reason I was shedding a large amount of blood – it was quite a shock.

So it was November 2018 and I was due to fly to Australia in less than 5 weeks for the biggest adventure of my life, and I had severely active Crohns which was in no way under control. The first thing they gave me was mesalazine suppositories – which it quickly became clear did absolutely nothing. I continued on the adlimumab, but as it got closer to Christmas, I began to get increasingly anxious that I was going to take myself to the other side of the world with no proper working treatment. Not to mention, I was exhausted. Barely functioning, barely socialising and barely stringing sentences together – the Crohns fatigue was REAL. Two days before we flew to Australia at the end of 2018, I was given high dose steroids. It wasn’t what I wanted, but I also wanted to feel well and enjoy the trip Josh and I had saved so hard for.

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Honeyzzz I’m back and WE ARE OFF 🇦🇺✈️🇦🇺 and what does an English person do before a 24 hour journey? Have a good cuppa of course! (With almond milk obvs) Christmas has been an joyous whirlwind and I cannot believe we are sitting here at T2 about to embark on a trip we’ve been planning for months.🥰 In all honesty, December was such an uphill struggle with my #Crohns – I did wonder if this moment would ever come. But here we are and I can’t wait to spend 6 weeks with my best friend & properly rest my body & soul 💖💖Hope you’ve all had an amazing Christmas – first stop, S Y D N E Y 🇦🇺✈️ I’m also officially open for foodie recs 🙌🏼 #abellyfullofhappy • • • • • • #glutenfree #dairyfree #foodblogger #foodblogeats #glutenfreelife #glutenfreedairyfree #londonfoodie #foodietravel #ibs #crohnsdisease #invisibleillness #gratitude #wordstoliveby #positivevibesonly #travellife #australia #passionpassport #sydney #nye #seetheworld #abellyfulloffood #sydneyaustralia

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2019

The Budesonide steroids got to work extremely quickly and our trip to Australia was AMAZING. I was still taking Adalimumab at this point, so I travelled around the country with all my meds (click here to find out how I did that) and I felt great, I loved every single minute of it.

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‘Will I ever be able to travel like I used to with IBD and my tummy troubles?’ The answer is HELL YES you can! 🌍 You just have to find out the best way to do it for you. I am so excited to share the first blog post of a mini series I am publishing on my site, which shares lots of tips and tricks I’ve learnt after my 6 weeks travelling #Australia. First up – ‘how are you camping with tummy problems??’ 🚌 This was the most common question into my DMs and I totally get it. Staying in a campervan or a tent inevitably means being further away from bathroom facilities & that obvs is a massive root of anxiety for many of us. And genuinely, if someone asked me to camp on the other side of the world 10 years ago I would have said no without a minutes thought. But I embraced this adventure and it was AMAZING. I so hope you find these tips useful & empowering too. Link in bio & as always id love to hear what you think 🌟✈️ #abellyfullofcrohns #abellyfullofhappy • • • • • • #glutenfree #senzaglutine #glutenfreelife #glutenfreedairyfree #dairyfreelife #londonfoodie #singluten #foodietravel #ibs #crohnsdisease #crohnsandcolitis #colitis #intolerances #invisibleillness #positivevibesonly #ibs #ibstips #crohnswarrior #australia #campervanlife #campervanculture #eastcoastaustralia

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I returned to the UK in February feeling good, refreshed and ready to kick arse in my brand new role, which was starting in April. That didn’t seem to last too long, as in March I was served with a stellar Crohns slap in the face in the form of an abscess on my bum. I unfortunately have experienced one of these before which required surgery, so I know all well how quickly the situation can escalate. I had three (yes three!!) rounds of antibiotics before it got to the stage when I had to go to A&E and have emergency surgery to drain it. It all happened so quickly it was such a shock – it also happened one week before I was due to start my new job. Talk about timing!

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Last Monday vs This Monday🥴🤯 Pic on the left: Last Monday served me a stellar Crohns shaped shock in the form of emergency surgery in A&E. Albeit minor, it was under general anaesthetic and has left me with a new wound to add to the scar party! Josh and I went straight from Cotswolds to A&E and 36 hours later I was high on morphine after surgery, with a open wound. 💖 Pic on the right: this is me, yesterday, starting my new job! No, I’m not 100% and I left early to have my daily wound dressing & lie down (literally), but I am beaming because Crohns has not bloody beaten me. 💖 I am not sharing this for a pat on the back (Josh, my friends + my family are giving me enough of those 🥰) I am sharing because this is exactly an example of when #Crohns will slap you in the face when you least expect it. But the point is with laughter, love and determination – there is nothing that can’t be accomplished. And a prime example of how you can never, ever know what someone is truly going through just by looking at them. Whatever your unexpected curveballs are, I urge you to laugh more than you cry, be kind to everyone even if you’re struggling yourself & trust that it will all get better. Because it always does 🙌🏼 #abellyfullofcrohns **FULL DISCLAIMER: I have not been this positive the whole time. In fact this morning I had a meltdown at my wound dressing because it made me late… but then I got a coffee & got on with it #hustler🤣☕️ ** • • • • • • #glutenfree #dairyfree #foodie #foodblogger #glutenfreelife #foodietravel #ibs #crohnsdisease #invisibleillness #gratitude #positivevibesonly #wordstoliveby #judgementfree #realtalk #wisdom #colitis #chronicillness #chronicillnessawareness #invisibleillnessawareness

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During this whole saga and the recovery period that followed, my other Crohns symptoms started to show their ugly little faces. The consultant appointment that followed was basically me crying about the abscess, crying that my symptoms had come back mixed with me telling the doctor very firmly (my mum said I was frighteningly firm!) that I needed a new treatment plan. So I came off adlimumab and started Ustekinumab – a different biologic drug. Little did I know that takes up to three months to work, so coming off the steroids just made me flare again so back onto the steroids I went. So as I sit here writing this, I feel amazing, but I’m on high dose steroids and Ustekinumab. Why does that sentence warrant a but, you might ask? It warrants a but to me because I am due to taper down my steroids very soon – and my track history follows the pattern of flaring up as soon as the steroid dose is reduced. So I am loving this feeling – but also feel well aware I have no idea how long it’ll last. What I HOPE is the Uste is working some magic in the background – and that will be what will prevent another flare up.

Now

This probably all sounds very negative – but the truth is, I honestly haven’t been unhappy during this time. Of course, I’ve had some real lows (the abscess really pushed me to breaking point), but overall I have tried to take it all in my stride and I have had unreal support. I started my job in April full time, but in June it became clear that full time shift work was not working in my favour. I went part time in July with the full support of work – and will continue that arrangement until I feel the time is right. Josh, my family and my friends have been there for me every single step of the way and I am very lucky I have multiple people I can call on if I need to. Despite my active Crohns, I still travelled around Australia, I still have been on holiday to Portugal and Spain, I’ve attended weddings, socialised, worked and I’ve hosted not one, but two A Belly Full Of events.

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💞 Crohn’s disease & mental health 💞 I’ve shown you so many ‘glam’ bits of my life recently that I realised it was about time I shared some other real bits – the #Crohns real bits. This photo was taken on Monday when I was having my first dose of a new medicine called Ustekinumab. I felt SO optimistic about this Med after my operation etc – and I still do – but my body had a very weird reaction to the IV (only temporary!) and I’m not going to lie, it unsettled me. Whilst this little wobble might not sound like much, the past two days I have been an emotional wreck. Welling up at a drop of a hat, having to practice deep breathing because I feel like I have an elephant is standing on my chest and then today I saw my GP and she said ‘and how is your mental health doing, whilst you are coping your Crohns?’ I was so stunned by the question I was speechless. Until I realised I legit haven’t been asked about my mental health by a doctor in relation to having a chronic illness for about 15 years. ✨ Of course my Crohns impacts my mental health. How could it not? Chronic illness can encompass your entire life – and recently it certainly has with me. My feelings aren’t unreasonable – it all stems from my brain trying to process what the hell is going on with my body. In my 23 years with #IBD I’ve experienced some lows but I have always come out the other side. Talking helps a lot – as well as knowing it’s okay to be angry and frustrated. It’s #mentalhealthawarenessweek and that is why I’m sharing this extremely personal post. Because I would hate anyone to look at my feed and think I cope with it all like a boss – because I don’t🙈 ✨If you ever feel like you need to talk there are many places you can do so – @mindcharity, @heads_together and @samaritanscharity are all an excellent place to start #abellyfullofcrohns • • • • • • #glutenfree #dairyfree #foodie #foodblogger #glutenfreelife #foodietravel #ibs #crohnsdisease #invisibleillness #gratitude #wordstoliveby #positivevibesonly #judgement #realtalk #wisdom #selflove #chronicillness #londonblogger #chronicillnessawareness #invisibleillnessawareness #mentalhealth #chronicillness

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My life philosophy is very much take every day as it comes and I truly live by this. I don’t worry about next week/next month and even next year, because I’ve learnt my Crohns can slap me in the face when I least expect it and I find it easier to just focus on the present, rather than worrying about what might happen in the future. Living with a chronic illness is a constant rollercoaster and focusing on the negatives never helps anyone does it? BUT what I do think is helpful is being honest, real and open. So I hope I have done this through this blog (and my events) – because I know how crippling isolating this disease can be.

If you’ve read to this point – THANK YOU! And I always love to hear what you think. This blog and my whole platform is about real and honest conversations. If I’ve inspired a thought or there is something else you’d like me to write about, please let me know!

Find me on Instagram, Twitter, Facebook or email me on abellyfullof@gmail.com.

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Lots of people have been getting in touch recently asking for Crohn’s or IBD advice after being first diagnosed and I suddenly thought it would benefit others to write down my entire Crohn’s story – warts and all, from start to finish (well, to present!), for World IBD Day today. I was diagnosed at the age of four, and now at the age of 25, I’ve experienced A WHOLE BUNCH OF STUFF, including lots of abdominal surgery (yes, I’ve had a ileostomy) and medication. I sincerely hope that documenting some of my experiences may help others suffering from IBD, those who have just been diagnosed or just want to understand more about the illness. It’s a confusing and ever changing illness and I must stress that every single person with IBD is individual. What works for one person won’t work for another – there is no IBD ‘path’ – you just have to carve your own story! (So basically, don’t freak out if you’re newly diagnosed and reading this!)

So let’s start with diagnosis, and to be honest, I can keep this pretty brief, seeing as I was four years old and I really don’t remember much! I was on holiday with my family in Wales, when my parents noticed I was getting extremely pale, not eating, losing weight and going to the bathroom A LOT. On one horrible morning when my mum asked me how I was feeling, I told her I was losing blood. I went straight to a hospital in Wales, where I was admitted and quickly transferred over to an expert gastro unit in Oxford, where I was diagnosed with Crohn’s Disease. And that was the start of my IBD journey! I should add here that Crohn’s Disease is an autoimmune disease – it is your immune system malfunctioning.

Steroids, crohns

Let’s ignrore my questionable haircut and my brother’s weird face. On steroids in primary school

In simple terms, the body eats away at the digestive system, causing inflammation, ulcers and bleeding anywhere along the digestive tract. I was at my sickest as a child; I remember countless birthdays and Easters spent in hospital. My first treatment was steroids, which sent me completely bonkers and made me put on weight faster than an inflating balloon. My disease was ravaging my large intestine, and although the steroids worked for a short time, as soon as my dose was reduced, I would start to flare again – big time. I went through cycles of mesalazine, azathioprine and infliximab, but nothing would calm my angry insides.

When I was coming up to about ten years old, I went on my first liquid diet. By this point, the conversations about having to remove my large intestine had been floating around for some months now. It was pretty clear that the disease was extremely resistant– it wasn’t responding to any medication. The liquid diet consisted of drinking cartons of Elemental 028, a nutritional drink designed to be absorbed instantly into the body, with your gut having to do absolutely zero work. As I was about to enter puberty,

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I thought I wore it well tbf. At school age 11

I was required to consume even more of the liquid to ensure my growth wasn’t stunted. It was physically impossible to drink the required amount, and so I would sleep with a tube that went up my nose and into my stomach and the rest of the liquid would be pumped into my body. In the very early days of the liquid diet, it was so traumatising having the tube passed up my nose that I didn’t want to take it out – so I went to school with it. The psychological battle was immense, but the liquid diet was my most effective treatment yet.

Alas, a few weeks after I started eating again, the Crohn’s returned with vengeance and at the age of twelve, I had an ileostomy formed. By this point I was practically begging them to take my large intestine out – I was tired of being constantly sick and living this half life in and out of hospital. Still being so young, they were reluctant to actually remove it all, and hoped that bypassing it via the ileostomy would help it heal. It did not. Nine months later I was back under anaesthetic and had my entire large intestine removed – with the exception of a tiny bit at the rectum. This tiny bit of intestine turned out to be my saving grace. Due to the mechanics of the colon, because I still had that little bit left, there was a chance they could reconnect my small intestine with the end of my large intestine and a chance I could be bag free in the future. To be honest, I think this is what got me through. Although I was desperate to feel better, nothing could prepare me for the emotional and psychological difficulties of living with a bag whilst I was going through puberty. A teenager is self-conscious enough as it is right – without having to worry about part of your intestine sticking out of your stomach! The three years with an ileostomy are a blur now, but it dramatically changed my quality of life. I finally had my life back. I was able to function – I was able to go to school everyday. I was able to hang out with my friends. I didn’t have to take drugs, I could eat what I wanted and I wasn’t at the mercy of my disease anymore.

When I reached the age of sixteen, the ileostomy had done its job and I was rewarded with a bag reversal. Another major operation, reopening my entire 30cm scar and another scar left where the ileostomy once was, but I was completely liberated. FREE FROM A BAG! Lollzzzz but totally not free of Crohn’s. I was actually pretty healthy doing my ALevels and I secured my place at Loughborough University to do a degree in Drama with seeming ease (health wise at least!) I had the most amazing time at university, but during this time, the Crohn’s began to spread to the lower part of my rectum and small intestine, and so I was put on Humira – a weekly injection administered myself. This managed to get the Crohn’s under control, but by my second year I was struggling with repetitive obstructive symptoms. I was in and out of hospital, in and out of A & E, and it came to pass that they had to operate.

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After my sixth operation, I asked my Mum to take this to let me friends know I was ok. Two hours out of surgery, I have no recollection of this being taken!!

Again. They found and closed an internal hernia, as well as adhesions, which were causing the obstructions. A year and a half later, just as I was completing my finals, the obstructive symptoms started again and after a particular memorable experience where I lay in a hospital bed in Leicester, surrounded by my friends and boyfriend who had fled a night out to my aid, I was under the knife again. Looking back, it was perhaps the immense amount of partying (I’m only human!) that took place over these three years that led me to need these two ops. The toll to my body was great and as I was recovering from my fifth operation, I began to ask myself, would these operations EVER stop?

After recovering from this fifth op, I plodded on quite well for a while. I got myself a job at the BBC as a Researcher and plunged myself into the world of commuting and full time work. I’d be lying if I said it was easy, my body took a while to adjust to the exhaustion. After my 21st birthday, a hernia popped up on my scar. LO AND BEHOLD – ANOTHER OPERATION. By this time I was officially at breaking point with being opened up so many times. I remember vividly bursting into hysterical tears in front of the surgeon and asking him, ‘WHEN WILL THIS END?’ I like to think I am an extremely strong individual, but I just couldn’t take any more operations. The isolation of the 8 week recovery alone was enough to send me completely insane, let alone the physical shock of going through all that pain over and over again.

scar 2016

Apols for the faint hearted here, but this was post my sixth op. You can see the little scar from my ileostomy too

I guess the positive of undergoing such repetitive surgery was becoming proud of my scar. It’s 30cm long, stretching from just below my chest to below my pelvis and it’s extremely visible. I wear it loud and proud now and I take the stares on the beach to mean, ‘wow – that girl must be made of steel!!’

I got to spring 2016, when I started to relapse again and I was given the choice, which lead me to start writing this blog in the first place. Sat in front of my gastro specialist, he told me I needed a quick treatment that was guaranteed to work – steroids. I couldn’t do it to my body- I couldn’t do it to my mental health! So I took on the one month liquid diet, which is where this blog was born. It was honestly the best thing I ever did and despite the mental battle, I came out feeling amazing. My skin was glowing and I appreciated the impact of what I put in my body more than ever. I reintroduced food gradually and found I was intolerant to whole food groups by keeping a food diary for weeks, which has further kept my tum happy. You can read my liquid diet journey here. In October, I learnt to meditate – a skill, which my paediatrician had tried to introduce to me during puberty. You can read more about my journey to meditation here.

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Ended up forming quite a bond with my liquid diet cartons

Since then I have taken a short nutrition course, started yoga classes and started experimenting with what I eat and how it feels in my tum. I feel so very grateful for the journey I have come on to where I am today. I whole-heartedly believe everything happens for a reason and my IBD journey was meant to lead me to where I am today. To stand tall, tell my story and be confident in who I am. Because there are thousands of stories like mine that aren’t being shared, or are being misunderstood. IBD ain’t glamorous. Heck, I’d enjoy a day where I didn’t think about my gut – but that is the reality for so many of us living with Crohn’s Disease or Ulcerative Colitis. This is what we live with and we plod on. We make mothers, fathers, partners, friends and colleagues and STILL battle the debilitating symptoms of IBD – with a smile. I dare anyone who is embarrassed or struggling to deal with their IBD to speak out, confide in a friends/family and realise YOU ARE STILL B****Y BRILLIANT. IBD will not rule your life.

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Living and loving life in Bali – wearing that scar loud and proud. YES I’VE BEEN TRAVELLING TOO!

If you’ve got to the end of this epically long post, then thank you so much for reading and I hope you have taken something from my story. I would welcome comments/feedback  (comment below!) and any of your stories. I would love to hear them all.

Happy World IBD Day!

*I know I haven’t just written a book, so to do a thank you sounds weird – but I can’t write this and not mention the amazing care I have received over my entire Crohn’s journey from the gastro team at John Radcliffe Hospital. They have always answered all my questions, listened to me when I have said no, given me VIP treatment and taken the best possible care of me. Brilliant, brilliant team.*

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